Various tests later, the ovarian masses
were confirmed to be semi-solid and my Ca-125 levels high. At age
twenty-four, with my favorite actor being Gilda Radnor's husband, I
had a scare that I was going to die of ovarian cancer. My doctor was
level-headed. He explained there are other reasons for these
findings, but all can be definitively confirmed or denied through
surgery only. I saw a second opinion- who had the same condescending
attitude I had gotten used to and told me to “just go on birth
control.” Been there, tried that, didn't work. I went in for my
first surgery.
I was diagnosed with Stage IV
endometriosis. Endometriosis is a mysterious disease, even after all
these years of study. It is staged like cancer, invades body tissues
in the abdomen and sometimes beyond, and can be debilitating. My
innards were so innundated with this disease my doctor told me he
would have diagnosed Stage V, if there had been a category like that.
The normal treatment for Stage IV is complete hysterectomy. I will
forever be grateful I had a young surgeon who recognized that very
early, surgically induced menopause would be more devestating that
the effects of this disease.
I was told that I would never be a mother. I could not imagine myself as a mother.
Three years later, I was on the
surgical table again. Different surgeon. Same diagnosis. I had done
research myself and knew that hysterectomy was not an option for me.
I had learned the disease is estrogen-based, and removal of the
ovaries does not cure the problem. Estrogen is still present, and
surgically-induced menopause often requires hormone replacement
therapy- putting that same old hormone right back in my body to keep
the disease active.
Infertility was still the byword. My
biological clock had started ticking.
Three more years, and my surgeon and I
decided to take a different tactic to deal with the pain. I was going
to try a hormonal drug first, followed by surgery. I had to call the
office the day my period showed up. I waited. And waited. After a
little while, a little nagging feeling convinced me to just try a
home pregnancy test. I actually tried ten. When I called my surgeon's
office and told him I was pregnant, he said, “No, you're not,”
and sent me for bloodwork.
Yes, I was. I was going to be a mother.
I had an early ultrasound to make sure
it was not ectopic. Everything was found to be healthy, though I
still had large ovarian masses. While I was pregnant, the masses went
away. So did the pain. The pain was gone for a total of six years-
pregnancy through breastfeeding.
My surgeon was an obstetrician. I
adored him as a surgeon treating me for a difficult and extensive
disease. I very quickly discovered I did not adore his philosophy on
pregnancy and birth. A scheduled cesarean section was offered at my
first prenatal visit. I thought it had something to do with my
disease and surgical history, but it turned out to just be a
suggestion as women “get tired of being pregnant.” I switched to
a homebirth midwife.
My daughter was born in a hospital
after many days of labor necessitating a nonemergency home to
hospital transfer. My back up physician was amazing. My midwives were
amazing.
My daughter is amazing. Being a mother
is incredible.
Two years ago, my pain level was
becoming very high again. Tests confirmed one ovarian mass had
returned (later the other was also affected). I delayed and delayed further tests and treatment, as I did
not want to go through surgery again. I finally made the decision to
see a specialist who would help
preserve my lady parts, rather than assume I didn't want them
anymore. Test results did not surprise me, being similar to previous
experience. The chances of pregnancy were listed as very tiny.
I faced the anxiety of upcoming
surgery. Worse was my anxiety I might lose any chance of ever having
another child again.
Because of my age, and the extent of my
disease history, the risk of cancer was higher. But all indications
showed the same kind of tumors I had already had- endometriomas,
which was reassuring. I had also had a pregnancy and had breastfed
for years, so risk of cancer was reduced. I figured things balanced
out, and made an agreement that I would only consent to a
hysterectomy if cancer was found.
The day before surgery, I had this
little nagging feeling.
Much to everybody's surprise, I tested
positive for pregnancy.
I realize there is a theme here.
My journey into motherhood started with
the dire prognosis of infertility, followed by an unexpected
pregnancy and birth. Ten years later, aching for those baby years,
knowing the devestation of endometriosis, adding in the term advanced
maternal age, with my hopes fragile, I faced the prognosis of
secondary infertility only to have another unexpected pregnancy.
I have the chance to treasure another
child.
With
this pregnancy, I am choosing midwifery care again. I know that a
healthy pregnancy is not a disease. I know that my endometriosis will
be helped by rather than hinder my pregnancy. I know that, with love
and support I will be strong and capable. I hope that, should a
medical need arise, I will find a physician who can be as caring and
compassionate- midwifery oriented- as the back-up I had with my
daughter.
My
first born miracle is very excited to be a big sister. I look forward
to the day I meet my second born gift face to face.
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